In the Videos of a Blogger Jules (26) everything revolves around cancer. How did the disease? What you eat as a Patient? Cannabis against cancer helps? What time is grow me hair again? So the title of the Videos on his Youtube channel “chemo blog”.
Mainz is one of the many bloggers who share their medical history with the Public. Recently, he once again invites you to a Video: He is now cancer-free, and ask how to do it now.
this question is Jules not alone. In the Federal Republic, of the centre for cancer registry data by the Numbers more than a Million people who have survived their cancer diagnosis for at least ten years. Healthy former cancer patients are not felt, in their experience, says the spokesperson of the organization of women’s self-help after cancer, Caroline Mohr, in front of the world cancer day on 4. February. The group was founded 40 years ago.
In the Organisation of cancer patients come together and, for some years, and male patients nationwide in over 300 groups, to discuss their disease, share. Even if a quarter of the members was deemed cancer-free, reported a lot about late effects: they were less powerful, complained about dizziness, exhaustion and loss of sensation in the arms and legs, says Mohr.
The Oncologist Georgia shilling is aware of these symptoms in cancer patients enough. The senior doctor, who works at the Asklepios Klinik Altona in Hamburg at the tumor center, the progress in cancer therapy, a once optimistic. Nevertheless, they are a two-edged sword. “We buy ourselves the success with side effects,” she says. If chemotherapy, immunotherapy and radiation were combined, not to come together at the end of a Cocktail of side effects, the patients loswürden even after the cancer and.
For example, in the daily work: 60 percent of cancer patients would live an average of 150 days of treatment break back in the profession. “However, we know that very many patients do not give up your Job again, because you create it,” says shilling.
Blogger Jules is taking it slow. By the end of 2018, he had the last chemotherapy. The freelance camera man working on a regular basis again, although significantly less than before the cancer. Of late effects, he can feel nothing except the fear that you could come.
a Particularly strong side effects children. “The younger the person, the more sensitive, for example, compared to radiation,” says Peter Kaatsch, head of the German childhood cancer registry at the University medical center of Mainz. The Numbers on the register to vote at the first glance, the positive: most children with cancer will be cured, therefore, now, ten years after therapy, 83 percent of the children are still alive.
“At the German children’s cancer registry, about 30 000 of these children,” says Kaatsch. The Register recorded cases since 1980 in West Germany and since 1991 for the Eastern länder. Many of the patients have late effects by the therapy: Kaatsch reported of heart-damaging drugs against leukemia, the age and sometimes even a heart transplant made in the case of healed patients in the young adult needed.
treated as A further example, Doctors lymph glands, cancer of the girls fell ill earlier often with radiation in the chest area – these would be declared as adults, women often breast cancer patient Kaatsch. In the case of children’s cancer to waivers, so in the meantime, if possible, of radiation – awareness of the late effects there is but it is only since the 2000s.
Kaatsch, for the affected people, there is still too little counselling. “There should be repetition hours for adults former children’s cancer patients.” The offers, which there are, would be mostly funded by parents – “because the health insurance companies should be brought into the boat”. Also Georgia shilling sees “much to little attention” for the subject and is convinced that the right support could facilitate many Concerned the way in their new life.
“One thing is for sure: All of them have said anxiety, again, begin with the everyday”, Youtuber Jules. For him, it means in the coming months: follow-up care. Every three to six months of studies. “The disease does not end.” If he also wants to share that with the Public, he does not know yet. For a long time in the future, he has no plans. “Because I never know what’s coming.”